OSCR

Mapping dementia research in Indonesia: A scoping review of evidence, gaps, and future directions.

Overview

Authors: Anna Tjin1,2, Fasihah Irfani Fitri3,4, Michael Maitimoe5, Diany Syafitri6,7, Shofia Mawaddah7,8, Tung Le9, Firda Aminy Ma’ruf10, Sarah Bauermeister11, Robert Stewart1,12, Iracema Leroi4,13, Asri Maharani14
14 affiliations
  1. Psychological Medicine, Institute of Psychiatry, Psychology & Neuroscience, King’s College London, London, United Kingdom
  2. Department of Japanese Studies, Faculty of Arts and Social Sciences, National University of Singapore, Singapore
  3. Department of Neurology, Faculty of Medicine, Universitas Sumatera Utara, Kota Medan, Sumatera Utara, Indonesia
  4. Global Brain Health Institute, Trinity College Dublin, Dublin, Ireland
  5. Alzheimer's Indonesia, South Jakarta City, Jakarta, Indonesia
  6. Sultan Agung Islamic University Indonesia, Semarang, Central Java, Indonesia
  7. Department of Psychology, Institute of Psychiatry, Psychology & Neuroscience, King’s College London, London, England
  8. Universitas Negeri Medan, Medan, North Sumatra, Indonesia
  9. Mental Health Research Group, Division of Nursing, Midwifery and Social Work, School of Health Sciences, University of Manchester, Manchester, United Kingdom
  10. Barts Cancer Institute, Queen Mary University of London, London, United Kingdom
  11. Department of Psychiatry, University of Oxford, Oxford, United Kingdom
  12. South London and Maudsley NHS Foundation Trust, London, United Kingdom
  13. School of Medicine, Trinity College Dublin, Dublin, Ireland
  14. Manchester Academic Health Science Centre (MAHSC), Manchester, United Kingdom
Journal: PLOS global public health, volume 6, issue 3, article e0005444
Dates: received 24 October 2025; accepted 16 February 2026; published online 9 March 2026
Type: Research article · Language: English
License: CC BY
Identifiers: DOI 10.1371/journal.pgph.0005444 · PMID 41801879 · PMCID PMC12970937 · OpenAlex W7134286511
Open access: gold, a free copy (OpenAlex)
Status: code found, not verified yet
Categories: Alzheimer's / dementia (population)
Journal subjects: Medicine and Health Sciences, Mental Health and Psychiatry, Dementia, Neurology, Biology and Life Sciences, Neuroscience, Cognitive Science, Cognitive Neuroscience, Cognitive Neurology, Cognitive Impairment, Alzheimer's Disease, Medical Conditions, Neurodegenerative Diseases, People and Places, Geographical Locations, Asia, Indonesia, Oceania, Frontotemporal Dementia, Public and Occupational Health, Cerebrovascular Diseases, Vascular Dementia, Health Care, Health Care Policy
Topic: Dementia and Cognitive Impairment Research (Psychiatry and Mental health, Medicine), according to OpenAlex
Citations: cited by 1 paper (Europe PMC); 134 references in the paper

Abstract

Dementia, a syndrome that progressively impairs cognitive functions, is a growing global health challenge. Indonesia, the world’s fourth most populous country, faces a growing dementia burden compounded by stigma and inequities in prevention, diagnosis, and care. This scoping review aims to synthesise dementia research in Indonesia, identify gaps, and propose directions for future research. Following the Joanna Briggs Institute and PRISMA-ScR guidelines, a comprehensive search across eight databases (MEDLINE, Embase, CINAHL, Global Health, Web of Science, PubMed, PsycINFO, and GARUDA) were conducted to identify studies in English and Indonesian. 105 studies were included, with most (93.3%) studies published after 2016, aligning with Indonesia’s National Dementia Plan and the WHO Global Action Plan on Dementia. Studies were predominantly cross-sectional (73.3%) and concentrated in urban areas. When mapped against the WHO Global Action Plan on Dementia (2017–2025), studies clustered around seven key themes. Key risk factors examined included older age, low education, female sex, low socioeconomic status, smoking, hypertension, diabetes, and physical inactivity. Work on diagnosis, treatment, and care has expanded, particularly through validation of cognitive screening tools (e.g., MoCA-INA, BCSB-INA) and emerging use of neuroimaging and biomarkers, though implementation remains limited by cost and workforce capacity. Intervention studies are typically small-scale, short-term, and lack longitudinal evaluation. Findings consistently showed high psychosocial and financial burden, especially among female family carers, with unmet needs for training and emotional support. Finally, policy and systems-level research highlighted limited integration of dementia into primary healthcare, inadequate data infrastructure, and minimal progress in translating the 2016 National Dementia Plan into sustainable support systems. Dementia research in Indonesia has expanded, yet geographical and methodological gaps persist. Future priorities should include nationally representative studies, implementation research, and multisectoral collaborations to advance the WHO’s vision of dementia as a public health priority and strengthen preparedness for its ageing population.

Reproduced under the paper's license (CC BY), from the paper cited above.

Code

No file of the authors' code could be read here: it is described below, and read at its source.

OSF c254b

License: none: the authors keep all their rights
State: unreachable at the last attempt, verified on 30 September 2026
Evidence: found in the paper
Software Heritage: not checked
Found in: the references
Not found: README, license file, CITATION.cff, environment file, tests, continuous integration, documentation
Availability: 1 check, the latest on 30 September 2026: unreachable at the last attempt (HTTP 401)
  • 30 September 2026: unreachable at the last attempt (HTTP 401)
At the source: osf.io/c254b

Tracing map

Proposed by the machine: these links were found in the paper and verified at the source, without human review. The map will receive a Zenodo DOI once one of the paper's authors has validated it with their ORCID.

What the map holds:

  • 1 repository of the authors' code, each at its verified commit, with its license and how the link was found in the paper;
  • 0 scripts, each with its path and the digest of its content;
  • no match between paragraphs and code yet;
  • neither the text of the paper nor the code itself.

Its JSON (tracing-map.json) is deposited on Zenodo with its DOI once the map is validated.

Data

No dataset and no data link were found in the paper.

Data Availability

Yes - all data are fully available without restriction; As this study is a scoping review, all data underlying the findings are derived from publicly available sources and are contained within the manuscript and its Supporting Information files.

Reproduced under the paper's license (CC BY), from the paper cited above.

Versions

The history of this record: each version stored by the harvester or made by a correction of its authors or of the maintainers of its code, and what changed in its facts. The texts of the paper (its abstract, its availability statements) are not part of it; versions that changed only those are not listed.

Version 1, 30 September 2026: the first record

Recorded: type, language, journal, volume, issue, pages, dates, 11 authors, 107 references.

Cite

This paper

Tjin, A., Fitri, F. I., Maitimoe, M., Syafitri, D., Mawaddah, S., Le, T., Ma’ruf, F. A., Bauermeister, S., Stewart, R., Leroi, I., & Maharani, A. (2026). Mapping dementia research in Indonesia: A scoping review of evidence, gaps, and future directions. PLOS global public health, 6(3), e0005444. https://doi.org/10.1371/journal.pgph.0005444

BibTeX

@article{tjin2026mapping,
author = {Tjin, Anna and Fitri, Fasihah Irfani and Maitimoe, Michael and Syafitri, Diany and Mawaddah, Shofia and Le, Tung and Ma’ruf, Firda Aminy and Bauermeister, Sarah and Stewart, Robert and Leroi, Iracema and Maharani, Asri},
title = {{Mapping dementia research in Indonesia: A scoping review of evidence, gaps, and future directions}},
journal = {PLOS global public health},
year = {2026},
month = mar,
volume = {6},
number = {3},
pages = {e0005444},
publisher = {PLOS},
issn = {2767-3375},
doi = {10.1371/journal.pgph.0005444},
url = {https://doi.org/10.1371/journal.pgph.0005444},
pmid = {41801879},
pmcid = {PMC12970937}
}

RIS

TY - JOUR
AU - Tjin, Anna
AU - Fitri, Fasihah Irfani
AU - Maitimoe, Michael
AU - Syafitri, Diany
AU - Mawaddah, Shofia
AU - Le, Tung
AU - Ma’ruf, Firda Aminy
AU - Bauermeister, Sarah
AU - Stewart, Robert
AU - Leroi, Iracema
AU - Maharani, Asri
TI - Mapping dementia research in Indonesia: A scoping review of evidence, gaps, and future directions
T2 - PLOS global public health
J2 - PLOS Glob Public Health
PY - 2026
DA - 2026/03/09
VL - 6
IS - 3
SP - e0005444
SN - 2767-3375
PB - PLOS
DO - 10.1371/journal.pgph.0005444
UR - https://doi.org/10.1371/journal.pgph.0005444
LA - en
ER -

CSL-JSON

{
"id": "10.1371/journal.pgph.0005444",
"type": "article-journal",
"title": "Mapping dementia research in Indonesia: A scoping review of evidence, gaps, and future directions",
"container-title": "PLOS global public health",
"author": [
{
"family": "Tjin",
"given": "Anna"
},
{
"family": "Fitri",
"given": "Fasihah Irfani"
},
{
"family": "Maitimoe",
"given": "Michael"
},
{
"family": "Syafitri",
"given": "Diany"
},
{
"family": "Mawaddah",
"given": "Shofia"
},
{
"family": "Le",
"given": "Tung"
},
{
"family": "Ma’ruf",
"given": "Firda Aminy"
},
{
"family": "Bauermeister",
"given": "Sarah"
},
{
"family": "Stewart",
"given": "Robert"
},
{
"family": "Leroi",
"given": "Iracema"
},
{
"family": "Maharani",
"given": "Asri"
}
],
"container-title-short": "PLOS Glob Public Health",
"volume": "6",
"issue": "3",
"page": "e0005444",
"DOI": "10.1371/journal.pgph.0005444",
"PMID": "41801879",
"PMCID": "PMC12970937",
"ISSN": "2767-3375",
"publisher": "PLOS",
"URL": "https://doi.org/10.1371/journal.pgph.0005444",
"language": "en",
"issued": {
"date-parts": [
[
2026,
3,
9
]
]
}
}

The tracing map gets a citation of its own once an author has validated it and it has a DOI.

Similar papers

The papers with a page that share the most with this one: the tools found in their code, their categories, datasets, cited references and authors, the rarest counting most.

[1] doi:10.1186/s12889-026-27289-1 [code]
UK dementia prevention policies and initiatives across the life-course: a scoping review (2009-2024).
Journal: BMC public health
In common: Alzheimer's / dementia, 2 references
[2] doi:10.2196/84707 [code]
Wireless Electroencephalography in Research on Children With Developmental Disabilities: Scoping Review.
Journal: Journal of medical Internet research
In common: 2 references
[3] doi:10.1590/2317-1782/e20250375pt [code]
A survey of strategies for the early diagnosis of hearing loss in infants: a scoping review.
Journal: CoDAS
In common: 2 references
[4] doi:10.7759/cureus.110620 [code]
Top-Cited Articles on Dysphagia and Cognitive Impairment: A Scopus-Based Bibliometric Analysis of Publications Retrieved Through October 2025.
Journal: Cureus
In common: Alzheimer's / dementia, 1 reference
[5] doi:10.1186/s12929-026-01249-8
β-Sitosterol β-D-glucoside (BSSG) triggers intestinal inflammation in zebrafish and mouse models prior to neurodegeneration onset.
Journal: Journal of biomedical science
In common: 1 reference
[6] doi:10.3389/fnagi.2026.1855522
Astragaloside IV attenuates hypoxia-reoxygenation-induced endothelial senescence and vascular inflammation by modulating the NOTCH1/VCAM-1 axis.
Journal: Frontiers in aging neuroscience
In common: Alzheimer's / dementia, 1 reference
[7] doi:10.1016/j.isci.2026.117038 [code]
Multi-region brain transcriptomes uncover two subtypes of aging individuals with differences in Alzheimer risk and the impact of <i>APOEε4</i>.
Journal: iScience
In common: Alzheimer's / dementia, 1 reference
[8] doi:10.1016/j.tjpad.2026.100649
Timing of cognitive decline onset and life-course trajectories A pooled longitudinal analysis of 14,389 adults across three cohorts.
Journal: The journal of prevention of Alzheimer's disease
In common: Alzheimer's / dementia, 1 reference
[9] doi:10.1016/j.jbc.2026.113363
The Src family kinase YES regulates DNAJB6b chaperone activity to modulate tau aggregation in Alzheimer's disease.
Journal: The Journal of biological chemistry
In common: Alzheimer's / dementia, 1 reference
[10] doi:10.3389/fnagi.2026.1862742
A brief checklist of modifiable dementia risk factors (RF12): associations with cognitive and affective measures in an Italian cohort.
Journal: Frontiers in aging neuroscience
In common: Alzheimer's / dementia, 1 reference

Contribute

The authors of this paper can claim it, correct its record and validate its tracing map, and the maintainers of its code (its owner, or a public member of its organization) correct what it says of their repository; anyone signed in can ask for its removal. Every request goes to OSCR's own machine, which answers it; your account page follows them.

Sign in with ORCID to claim this paper as one of its authors, correct its record or validate its tracing map: when the paper's metadata lists your ORCID iD, you are recognized at once. Maintainers of its code: sign in with GitHub, then claim the repository on your account page.

Request its removal

To ask OSCR to remove this record, the copies of its authors' scripts or its tracing map, use the removal request page: signed in, you say who you are, what to remove and why, then review and confirm the request. Published rules decide every request (how).

Discussion, reproductions, activity

Discussion: questions and error reports about this paper and its code, from signed-in readers and its authors. It opens with sign-in.

Reproductions: reports from readers who ran the authors' code: what they reproduced, with which environment, commit and data. It opens with sign-in.

Activity: what happens around this paper: new versions of its record, its map's validation, discussions and reproductions. It opens with sign-in.